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November 25, 2008British Journal of Cancer177 citationsOpen Access

Ethics and biobanks

MHMats Hansson

Key Points

  • To review international literature and identify emerging consensus and ongoing ethical debates surrounding biobank research.
  • Literature review evaluating ethical frameworks, regulatory perspectives, and scholarly discussions published in scientific journals.
  • Broad or general consent is emerging internationally as the preferred ethical model for biobank investigations.
  • Clear instructions for data coding optimize subject privacy while facilitating research into disease prevention and medical treatments.
  • Returning individual research findings to donors remains a complex challenge, though concrete analytical recommendations are increasingly proposed.

Abstract

Biobank research has been the focus of great interest of scholars and regulatory bodies who have addressed different ethical issues. On the basis of a review of the literature it may be concluded that, regarding some major themes in this discussion, a consensus seems to emerge on the international scene after the regular exchange of arguments in scientific journals. Broad or general consent is emerging as the generally preferred solution for biobank studies and straightforward instructions for coding will optimise privacy while facilitating research that may result in new methods for the prevention of disease and for medical treatment. The difficult question regarding the return of information to research subjects is the focus of the current research, but a helpful analysis of some of the issues at stake and concrete recommendations have recently been suggested.

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Cite This Study

Mats Hansson (2008) studied this question.

synapsesocial.com/papers/6a09621a16dfdfe7ed340b1chttps://doi.org/10.1038/sj.bjc.6604795
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