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June 1, 2026Cancer Survivorship Research & Care0 citationsOpen Access

Capturing financial experiences of cancer survivors: a scoping review and call for consensus

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EPE C ParkMLMelis LydstonNDNatalie M. Durieux

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Abstract

Background Variation in conceptualization and measurement of financial consequences of cancer treatment poses issues for analysis and interpretation.Aims This scoping review characterized terms, conceptualizations, and measures used to describe financial experiences of post-treatment cancer survivors.Methods Reported according to PRISMA-ScR guidelines, searches for published literature on financial experiences were conducted using Medline (Ovid), Embase.com (Elsevier), Core Collection (Web of Science), Cochrane Central (Ovid), and ClinicalTrials.gov in February 2026. U.S.-based empirical studies with adult (≥18 years) cancer survivors (≥6 months post-treatment) were eligible.Results 5901 titles and abstracts were double screened for eligibility, yielding 623 for full text review; 125 met criteria for data extraction. We identified 11 terms and 58 measures. Financial hardship and burden were most prevalent, often used interchangeably. Financial toxicity described the impact of cancer-related financial consequences on quality of life. Financial stress/distress and financial worry described psychological aspects of financial hardship/burden, whereas financial problems, strain, difficulty, and economic burden described material and behavioral domains. Common measures included the Medical Expenditure Panel Survey (N = 24), the National Health Interview Survey (N = 24), and the COmprehensive Score for Financial Toxicity (N = 23).Conclusions Future work should look to consolidate the terms, their definitions, and measurement of the financial experiences.

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Park et al. (2026) studied this question.

synapsesocial.com/papers/6a22b68c9433475d0a11ca70https://doi.org/10.1080/28352610.2026.2675187
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