Communities of Practice and Living Labs: A Scoping Review of Principles and Methodologies for Involvement of Lived Experience Experts in Health and Healthcare Research

Key Points

• The aim is to explore and outline principles and methodologies for involving experts with lived experience in health research.
• Conducted a scoping review of relevant literature on lived experience involvement
• Analyzed existing practices within communities of practice and living labs
• Collected insights from a Public Advisory Committee consisting of individuals with dementia and their carers.
• Identified key principles for effective involvement of lived experience experts
• Outlined methodological frameworks that support collaboration in health research
• Provided recommendations for enhancing patient and public participation in research.