Discussing Death by Neurologic Criteria in Pediatrics: Opportunities and Challenges for Families and Clinicians

Key Points

• This research explores the challenges families face in understanding death by neurologic criteria and identifies ways to improve communication.
• Analyzed family experiences regarding death by neurologic criteria (BD/DNC)
• Evaluated clinician communication practices
• Identified needs for educational resources and institutional support
• Family understanding of BD/DNC is limited, even among patient and family advisory council members
• Improved clinician training and cultural communication could enhance understanding
• Online educational tools may help families navigate these emotional challenges