PROPEL: Capturing the lived experience of lung cancer for patients and caregivers.

e23255 Background: A limited understanding of the lived experience of a lung cancer diagnosis hinders the development of a resource framework that effectively supports people with the diagnosis (patients) and their support systems (caregivers). Addressing this knowledge gap is essential to identifying ways to enhance quality of life in both within the healthcare setting and in everyday life. Methods: PROPEL (Patient Reported Outcomes of People Experiencing Lung Cancer) is a real-world, non-interventional study designed examining the lived experience of patients and caregivers. Participants self-enrolled and completed tailored series of validated patient-reported outcome measures (PROMs) capturing the multidimensional impacts of a lung cancer diagnosis on health, wellbeing, and functioning. To assess health-related quality of life, patients completed the EORTC QLQ-C30 and selected PROMIS scales, while caregivers completed the Caregiver Roles and Responsibilities (CRRS) questionnaire. Results: 57 patients have enrolled; most were female (63%), aged 55-75 years (61%), reported Stage IV disease (70%), and were undergoing treatment (84%). 21% identified as a visible minority. The EORTC QLQ-C30 Global Health Scale (scale range 0-100) indicated moderate quality of life ( = 62.7; σ: 20.1), low symptom burden ( 0.75). Conclusions: PROPEL is the first Canadian study to collect comprehensive PROMs data on lung cancer, capturing the experiences of patients and caregivers and highlighting significant burdens. This builds a knowledge base to guide the development of support services for comprehensive wrap-around care.