PURPOSE: Listening differences, particularly difficulties listening to speech in background noise, are well documented in autism. They can significantly affect individuals' well-being, social participation, and opportunities. Autistic people report that clinical guidance on managing these difficulties is lacking, meaning that they are left to develop their own strategies through trial and error. Underlying this limited support is limited research on the topic. The present study was co-produced with the autistic community to address this crucial gap in knowledge, gathering data on the listening strategies used by autistic adults, including their costs and benefits. METHOD: Through an online survey, 65 autistic adults described the strategies they used to manage difficult listening situations. A subset of participants provided supplementary data via an e-mail "interview" on the costs and benefits of their strategies, and how they were learnt or devised. This approach allowed interactive questioning without the stresses associated with conventional interview techniques. RESULTS: Content analysis identified 91 strategies, organized thematically into six categories: shaping the listening situation, disclosing differences, requesting and encouraging adaptations, using internal strategies, using technology, and using vision. Most were rated "quite" or "very" useful by their users but were not without their costs. Nearly all were devised without clinical support. CONCLUSIONS: Autistic participants were able and willing to articulate the behaviors and technologies they rely on to manage challenging auditory environments. The evident need for tailored resources for both the community and clinicians makes these user-generated strategies a valuable foundation for developing effective guidance. This community-driven approach is especially relevant given the risks associated with clinical advice that may inadvertently promote masking behaviors. Overall, our data support a person-centered approach to this critical, yet often overlooked, domain.
Sturrock et al. (Mon,) studied this question.