Pediatric palliative care (PPC) data are largely absent from national cancer registries, creating critical gaps in understanding when and how children with cancer receive PPC and hindering efforts to improve care, equity, and outcomes. Standardized, longitudinal PPC data elements-mandated through state reporting laws and integrated into national data ecosystems-are essential to enable meaningful linkage, research, and policy development relevant to childhood cancer.
Weaver et al. (Fri,) studied this question.