Speech and swallow outcome measures for ALS and perspectives on remote monitoring: an international survey of speech & language therapists

Key Points

• To identify effective measurement tools for speech and swallow functions in ALS as seen by speech and language therapists.
• Conducted an international survey of speech and language therapists (SLTs).
• Gathered opinions on measurement instruments for assessing speech and swallow in ALS.
• Evaluated preferences for remote monitoring technologies.
• SLTs indicated a need for better measurement instruments for speech and swallow in ALS.
• Digital patient-reported outcome measures (PROMs) were seen as beneficial.
• Outcomes that reflect communication and swallow success were prioritized by therapists.