Key points are not available for this paper at this time.
Defining ethical practices for research using data from digital and social media communities is an ongoing challenge. This paper reports on interviews with digital and social media researchers to investigate the challenges they experienced when collecting, managing, and analyzing online data. Analysis of the interviews reveals a diverse set of ethical challenges that push at the boundaries of existing research ethics guidance. The interview data also describes existing practices for navigating ethical quandaries, and documents resources that help researchers meet ethical challenges. The analysis of the data points to opportunities for review boards and ethics researchers as well as new debates to undertake as a community.
Shilton et al. (Fri,) studied this question.
Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context: