PatientsLikeMe (United States)

Recent papers from PatientsLikeMe (United States)

1. Effectiveness and the patient experience with vortioxetine vs other standard-of-care antidepressants in major depressive disorder: Real-world insights from an observational, prospective, decentralized study using the PatientsLikeMe platformJournal of Affective Disorders Reports · 2026
2. Survey of patient experience and management of vasomotor symptoms due to menopause from the PatientsLikeMe communityMenopause The Journal of The North American Menopause Society · 2024
3. Retrospective text and qualitative analyses of patient experience and management of vasomotor symptoms due to menopause: voices from the PatientsLikeMe communityMenopause The Journal of The North American Menopause Society · 2024
4. Development and preliminary validation of the Sexual Minority Adolescent Stress Inventory-Short Form.Psychology of Sexual Orientation and Gender Diversity · 2024
5. “It’s embarrassing. I get angry. I get frustrated.”: Understanding severe hypoglycemia and glucagon usage from the perspectives of people with type 1 diabetesJournal of Clinical & Translational Endocrinology · 2022
6. Characteristics, Symptom Severity, and Experiences of Patients Reporting Chronic Kidney Disease in the PatientsLikeMe Online Health Community: Retrospective and Qualitative StudyJournal of Medical Internet Research · 2020
7. Real-world patient experience with sexual dysfunction and antidepressant use in patients with self-reported depression: A cross-sectional survey studyNeurology Psychiatry and Brain Research · 2020
8. Characteristics, Symptom Severity, and Experiences of Patients Reporting Chronic Kidney Disease in the PatientsLikeMe Online Health Community: Retrospective and Qualitative Study (Preprint)2020
9. Treatment Satisfaction and Burden of Illness in Patients with Newly Diagnosed Multiple MyelomaPharmacoEconomics - Open · 2019
10. Measuring compassionate healthcare with the 12-item Schwartz Center Compassionate Care ScalePLoS ONE · 2019
11. Patient-Reported Factors in Treatment Satisfaction in Patients with Relapsed/Refractory Multiple Myeloma (RRMM)The Oncologist · 2019
12. Beyond the hype of big data and artificial intelligence: building foundations for knowledge and wisdomBMC Medicine · 2019
13. Human gut derived-organoids provide model to study gluten response and effects of microbiota-derived molecules in celiac diseaseScientific Reports · 2019
14. The Missing Reality of Real Life in Real‐World EvidenceClinical Pharmacology & Therapeutics · 2019
15. Patient perspectives on the linkage of health data for research: Insights from an online patient community questionnaireInternational Journal of Medical Informatics · 2019
16. Mental Health Apps in Psychiatric Treatment: A Patient Perspective on Real World Technology UsageJMIR Mental Health · 2019
17. Statistical assessment and visualization of synergies for large-scale sparse drug combination datasetsBMC Bioinformatics · 2019
18. Digital Trespass: Ethical and Terms-of-Use Violations by Researchers Accessing Data From an Online Patient CommunityJournal of Medical Internet Research · 2019
19. Patient perceptions of their glycemic control and its influence on type 2 diabetes outcomes: an international survey of online communitiesPatient Preference and Adherence · 2019
20. Lunasin does not slow ALS progression: results of an open-label, single-center, hybrid-virtual 12-month trialAmyotrophic Lateral Sclerosis and Frontotemporal Degeneration · 2019