Foundation Fighting Blindness

Recent papers from Foundation Fighting Blindness

1. Static Perimetry-OCT Topographical Overlay Findings in the RUSH2A StudyTranslational Vision Science & Technology · 2026
2. Mobilizing participation: The first German stakeholder conference on engaging patients and self-help organizations in digital health researchDigital Health · 2026
3. Investment in Alzheimer's disease research for the next generation of adults with Down syndrome will yield health benefits for future generationsAlzheimer s & Dementia · 2025
4. Progression of Dark-Adapted Visual Fields Over 3 Years in the Rate of Progression in USH2A-Related Retinal Degeneration (RUSH2A) StudyInvestigative Ophthalmology & Visual Science · 2025
5. Functional Vision Assessment Over 4 Years in USH2A Using the Veteran Affairs Low-Vision Visual Functioning QuestionnaireInvestigative Ophthalmology & Visual Science · 2025
6. Characterizing the Genetic Basis for Inherited Retinal Disease: Lessons Learned From the Foundation Fighting Blindness Clinical Consortium's Gene PollInvestigative Ophthalmology & Visual Science · 2025
7. Inherited Retinal Degenerations and Non-Neovascular Age-Related Macular Degeneration: Progress and Unmet NeedsTranslational Vision Science & Technology · 2024
8. Clinical Exome-Based Redefinition and Reclassification of Retinitis PigmentosaJournal of Korean Medical Science · 2024
9. Dance Education Leadership Situated: Theories and ContextsJournal of Dance Education · 2024
10. Visual Acuity, Full-field Stimulus Thresholds, and Electroretinography for 4 Years in The Rate of Progression of USH2A-related Retinal Degeneration (RUSH2A) StudyOphthalmology Science · 2024
11. Racial Disparities in Genetic Detection Rates for Inherited Retinal DiseasesJAMA Ophthalmology · 2024
12. Complications of Silicone Oil as Vitreous Tamponade in Pars Plana Vitrectomy: A Mini ReviewCurrent Eye Research · 2024
13. Endpoints and Design for Clinical Trials in USH2A-Related Retinal Degeneration: Results and Recommendations From the RUSH2A Natural History StudyTranslational Vision Science & Technology · 2024
14. Current and Future Directions in Developing Effective Treatments for PRPH2-Associated Retinal Diseases: A Workshop ReportTranslational Vision Science & Technology · 2024
15. Report From the Second Global Scientific Conference on Clinical Trial Design and Outcome Measures for RDH12-Associated Inherited Retinal DegenerationTranslational Vision Science & Technology · 2024
16. Self-Reported Functional Vision in USH2A-Associated Retinal Degeneration as Measured by the Michigan Retinal Degeneration QuestionnaireInvestigative Ophthalmology & Visual Science · 2024
17. Qualitative exploration of the visual function impairments and impacts on vision-dependent activities of daily living in Retinitis Pigmentosa and Leber Congenital Amaurosis: content validation of the ViSIO-PRO and ViSIO-ObsRO measuresJournal of Patient-Reported Outcomes · 2023
18. Overcoming the Challenges to Clinical Development of X-Linked Retinitis Pigmentosa Therapies: Proceedings of an Expert PanelTranslational Vision Science & Technology · 2023
19. Development of Novel Patient-Reported Outcome (PRO) and Observer-Reported Outcome (ObsRO) Instruments in Retinitis Pigmentosa (RP) and Leber Congenital Amaurosis (LCA): ViSIO-PRO and ViSIO-ObsROOphthalmology and Therapy · 2023
20. Psychometric Validation of the ViSIO-PRO and ViSIO-ObsRO in Retinitis Pigmentosa and Leber Congenital AmaurosisOphthalmology and Therapy · 2023