Spina Bifida Association

Recent papers from Spina Bifida Association

1. Estimating prevalence of spina bifida: The urgent need for more accurate approachesDevelopmental Medicine & Child Neurology · 2026
2. Healthcare transition in spina bifida: A national mixed method studyHealth Care Transitions · 2026
3. Clinical priorities to improve the neuropsychological care of individuals with Spina Bifida: A consensus statement of the Spina Bifida Association and the Spina Bifida and Hydrocephalus Neuropsychology CollaborativeThe Clinical Neuropsychologist · 2025
4. Research Priorities for Children With Hypoxic-Ischemic Encephalopathy or Myelomeningocele: A Survey of ParentsPediatric Neurology · 2024
5. Comparable Ventilatory Inefficiency at Maximal and Submaximal Performance in COPD vs. CHF subjects: An Innovative ApproachArquivos Brasileiros de Cardiologia · 2024
6. International collaborations on advocacy, education, and research: Broad-spectrum thematic diversity catalyzes multidisciplinary spina bifida careJournal of Pediatric Rehabilitation Medicine · 2023
7. From autism to zoom®: Spina bifida advocacy, care, education, and research in a changing world1Journal of Pediatric Rehabilitation Medicine · 2022
8. Weight Status of Children Participating in the National Spina Bifida Patient RegistryPEDIATRICS · 2022
9. Prevention and awareness of birth defects across the lifespan using examples from congenital heart defects and spina bifidaBirth Defects Research · 2021
10. Innovations in Telemedicine Services in Spina Bifida Clinics in the U.S. During the Covid-19 PandemicTechnology & Innovation · 2021
11. Site, frequency, and duration of pain in young children with spina bifidaJournal of Pediatric Rehabilitation Medicine · 2021
12. Quality of life: Guidelines for the care of people with spina bifidaJournal of Pediatric Rehabilitation Medicine · 2020
13. The Benefits of Including Hummus and Hummus Ingredients into the American Diet to Promote Diet Quality and Health: A Comprehensive ReviewNutrients · 2020
14. Essential Components of a Public Health Tuberculosis Prevention, Control, and Elimination Program: Recommendations of the Advisory Council for the Elimination of Tuberculosis and the National Tuberculosis Controllers AssociationMMWR Recommendations and Reports · 2020
15. Guidelines for the treatment of latent tuberculosis infection: Recommendations from the National Tuberculosis Controllers Association and CDC, 2020American Journal of Transplantation · 2020
16. Guidelines for the Treatment of Latent Tuberculosis Infection: Recommendations from the National Tuberculosis Controllers Association and CDC, 2020MMWR Recommendations and Reports · 2020
17. Needs assessment survey for children and adults with spina bifida in GeorgiaJournal of Pediatric Rehabilitation Medicine · 2019
18. Survey of U.S. adults with spina bifidaDisability and health journal · 2019
19. Clinical Practice Guideline: Hoarseness (Dysphonia) (Update) Executive SummaryOtolaryngology · 2018
20. Clinical Practice Guideline: Hoarseness (Dysphonia) (Update)Otolaryngology · 2018