Nederlandse Cystic Fibrosis Stichting

Recent papers from Nederlandse Cystic Fibrosis Stichting

1. The Sex of Donor and Recipients in Solid Organ Transplantation: An in Depth Analysis Across the Council of Europe Member StatesTransplant International · 2026
2. Unveiling Donor-Derived BKPyV DNAemia Through Analysis of Contralateral Kidney Transplant RecipientsBiomedicines · 2026
3. Standardized Interoperable Data Collection for Myositis Research: Developing Expert Consensus on Common Data Elements for Myositis Outcome Measures.2026
4. Assessment of Posttraumatic Stress Disorder in Adults With Severe or Moderate Intellectual Disability Using the Diagnostic Interview Trauma and Stressors–Severe Intellectual DisabilityJournal of Intellectual Disability Research · 2026
5. Introduction of Ivacaftor/Lumacaftor in Children With Cystic Fibrosis Homozygous for F508del in the Netherlands: A Nationwide Real‐Life StudyPediatric Pulmonology · 2025
6. Impact of COVID-19 infection on lung function and nutritional status amongst individuals with cystic fibrosis: A global cohort studyJournal of Cystic Fibrosis · 2024
7. Evolution of nutritional management in children with cystic fibrosis – a narrative reviewJournal of Human Nutrition and Dietetics · 2024
8. Development and validation of a novel personalized electronic patient-reported outcome measure to assess quality of life (Q-LIFE): a prospective observational study in people with Cystic FibrosisEClinicalMedicine · 2023
9. Epidemiology and management of nontuberculous mycobacterial disease in people with cystic fibrosis, the NetherlandsJournal of Cystic Fibrosis · 2022
10. Public Health Workforce Perceptions About Organizational Commitment to Diversity, Equity, and Inclusion: Results From PH WINS 2021Journal of Public Health Management and Practice · 2022
11. Long-term effectiveness of dual CFTR modulator treatment of cystic fibrosisERJ Open Research · 2022
12. Factors associated with clinical progression to severe COVID-19 in people with cystic fibrosis: A global observational studyJournal of Cystic Fibrosis · 2022
13. Factors for severe outcomes following SARS-CoV-2 infection in people with cystic fibrosis in EuropeERJ Open Research · 2021
14. Competing sexual-asexual generic names in Agaricomycotina (Basidiomycota) with recommendations for useIMA Fungus · 2021
15. Incidence of SARS-CoV-2 in people with cystic fibrosis in Europe between February and June 2020Journal of Cystic Fibrosis · 2021
16. Mini-Gut Feelings: Perspectives of People with Cystic Fibrosis on the Ethics and Governance of Organoid BiobankingPersonalized Medicine · 2021
17. Data and optimisation requirements for Kidney Exchange ProgramsHealth Informatics Journal · 2021
18. Forskolin-induced swelling of intestinal organoids predicts long-term cystic fibrosis disease progression2021
19. A multinational report to characterise SARS-CoV-2 infection in people with cystic fibrosisJournal of Cystic Fibrosis · 2020
20. Responsible use of organoids in precision medicine: the need for active participant involvementDevelopment · 2020