Vasculitis Foundation

Recent papers from Vasculitis Foundation

1. Frailty and Associated Outcomes in Patients With VasculitisThe Journal of Rheumatology · 2025
2. A study of implementation factors for a novel approach to clinical trials: constructs for consideration in the coordination of direct-to-patient online-based medical researchBMC Medical Research Methodology · 2024
3. Reproductive Outcomes for Women With VasculitisThe Journal of Rheumatology · 2024
4. Exploring Reproductive Experiences With Women Enrolled in the International Vasculitis Pregnancy RegistryThe Journal of Rheumatology · 2024
5. Racial and Ethnic Distribution of Rheumatic Diseases in Health Systems of the National Patient-Centered Clinical Research NetworkThe Journal of Rheumatology · 2023
6. Improving Care in Eosinophil-Associated Diseases: A CharterAdvances in Therapy · 2022
7. Identifying relevant determinants of in-hospital time to diagnosis for ANCA-associated vasculitis patientsRheumatology Advances in Practice · 2022
8. Medication Interruptions and Subsequent Disease Flares During the COVID ‐19 Pandemic: A Longitudinal Online Study of Patients With Rheumatic DiseaseArthritis Care & Research · 2021
9. Outcomes of COVID-19 in patients with primary systemic vasculitis or polymyalgia rheumatica from the COVID-19 Global Rheumatology Alliance physician registry: a retrospective cohort studyThe Lancet Rheumatology · 2021
10. Patient-Powered Research Networks of the Autoimmune Research Collaborative: Rationale, Capacity, and Future DirectionsPatient · 2021
11. Diagnostic delays in vasculitis and factors associated with time to diagnosisOrphanet Journal of Rare Diseases · 2021
12. Harnessing health plan enrollee data to boost membership in patient-powered research networksBMC Health Services Research · 2020
13. Patient involvement in medical research: what patients and physicians learn from each otherSHILAP Revista de lepidopterología · 2019
14. Data linkages between patient-powered research networks and health plans: a foundation for collaborative researchJournal of the American Medical Informatics Association · 2019
15. Experience With Direct-to-Patient Recruitment for Enrollment Into a Clinical Trial in a Rare Disease: A Web-Based StudyJournal of Medical Internet Research · 2017
16. Exploration, Development, and Validation of Patient-reported Outcomes in Antineutrophil Cytoplasmic Antibody–associated Vasculitis Using the OMERACT ProcessThe Journal of Rheumatology · 2015