Lennox-Gastaut Syndrome Foundation

Recent papers from Lennox-Gastaut Syndrome Foundation

1. Validation of the diagnosis of Lennox–Gastaut syndrome: Challenges and lessons learnedEpilepsia · 2026
2. Receiving information and determining research priorities for Lennox-Gastaut syndrome: A community-focused study of caregivers’ experiences and preferencesEpilepsy Research · 2026
3. Views of caregivers, clinicians, and epilepsy advocacy group representatives on survey instruments used to assess behavior, communication, and quality of life in individuals with Lennox-Gastaut syndromeEpilepsy Research · 2026
4. Mortality Rates and Risk Factors Among Patients with Lennox-Gastaut Syndrome or Dravet Syndrome (P9-10.002)Neurology · 2026
5. Biomarker discovery in Lennox-Gastaut syndrome: Advances and challenges in electrophysiological, genetic, neuroimaging, and neuroinflammatory approachesEpilepsy & Behavior · 2026
6. A temporary spike: Investigating Lennox–Gastaut syndrome incidence in the US following FDA approval of cannabidiolEpileptic Disorders · 2026
7. Current practices and trends in surgical decision‐making for children with Lennox–Gastaut syndrome: A cross‐sectional survey by the Pediatric Epilepsy Research ConsortiumEpilepsia Open · 2025
8. A survey of adult caregivers of people with developmental and epileptic encephalopathies: A long-term care planning needs assessmentEpilepsy & Behavior · 2025
9. Navigating the Diagnosis: A survey on Caregivers’ Journeys to Lennox-Gastaut SyndromeEpilepsy & Behavior · 2025
10. Comparative effectiveness of epilepsy surgery versus additional anti-seizure medications for Lennox–Gastaut syndrome: study protocol for a multicenter, mixed-methods studyFrontiers in Neurology · 2025
11. Caregiver-reported non-seizure and seizure outcomes with cannabidiol and clobazam in patients aged ≥2 years with Lennox-Gastaut syndrome or Dravet syndrome: A subgroup analysis of the BECOME surveySeizure · 2025
12. A personalized multi-platform assessment of somatic mosaicism in the human frontal cortex2024
13. Clinical trials for Lennox–Gastaut syndrome: Challenges and prioritiesAnnals of Clinical and Translational Neurology · 2024
14. Nonseizure- and seizure-related benefits of cannabidiol treatment in the real world: plain language summary of the results from a caregiver surveyFuture Neurology · 2024
15. Caregiver-reported outcomes with real-world use of cannabidiol in Lennox-Gastaut syndrome and Dravet syndrome from the BECOME surveyEpilepsy Research · 2023
16. Proposed anti-seizure medication combinations with rufinamide in the treatment of Lennox-Gastaut syndrome: Narrative review and expert opinionSeizure · 2023
17. Psychosocial impact on siblings of patients with developmental and epileptic encephalopathiesEpilepsy & Behavior · 2020
18. Seizure burden in severe early‐life epilepsy: Perspectives from parentsEpilepsia Open · 2019