International Fibrodysplasia Ossificans Progressiva Association

Recent papers from International Fibrodysplasia Ossificans Progressiva Association

1. Measures of mortality among people living with fibrodysplasia ossificans progressiva in the United States, 2017–2023JBMR Plus · 2026
2. Content Validation of the Flares Diary: A Qualitative Analysis of the Flares Experience Within the Fibrodysplasia Ossificans Progressiva (FOP) PopulationAdvances in Therapy · 2026
3. Assessment of different types of bone imaging in patients with fibrodysplasia ossificans progressiva: a plain language summary from additional analysis of the LUMINA-1 StudyFuture Rare Diseases · 2025
4. The effects of garetosmab in people with fibrodysplasia ossificans progressiva (FOP): A plain language summary of the LUMINA-1 studyFuture Rare Diseases · 2024
5. Improving care pathways for people living with rare bone diseases (RBDs): outcomes from the first RBD SummitOsteoporosis International · 2023
6. Limitations of Jaw Movement in Fibrodysplasia Ossificans Progressiva: A ReviewFrontiers in Medicine · 2022
7. Social and clinical impact of COVID-19 on patients with fibrodysplasia ossificans progressivaOrphanet Journal of Rare Diseases · 2022
8. Caregiver Support in Fibrodysplasia Ossificans ProgressivaJournal of Rare Diseases Research & Treatment · 2021
9. Principles for interactions with biopharmaceutical companies: the development of guidelines for patient advocacy organizations in the field of rare diseasesOrphanet Journal of Rare Diseases · 2018
10. Heparan Sulfate Proteoglycans (HSPGs) Modulate BMP2 Osteogenic Bioactivity in C2C12 CellsJournal of Biological Chemistry · 2006
11. Iatrogenic Harm Caused by Diagnostic Errors in Fibrodysplasia Ossificans ProgressivaPEDIATRICS · 2005
12. Influenza-like Viral Illnesses and Flare-ups of Fibrodysplasia Ossificans ProgressivaClinical Orthopaedics and Related Research · 2004
13. Limb Swelling in Patients Who Have Fibrodysplasia Ossificans ProgressivaClinical Orthopaedics and Related Research · 1997
14. Age- and Joint-Specific Risk of Initial Heterotopic Ossification in Patients Who Have Fibrodysplasia Ossificans ProgressivaClinical Orthopaedics and Related Research · 1994