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Care-for-Rare Foundation

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Homepage: http://www.care-for-rare.org/en/

Recent papers from Care-for-Rare Foundation

A Core Outcome Set for Family-Centered Care in Neonatal Intensive Care Settings: An International eDelphi Study and Online Consensus MeetingChildren · 2026
Editorial: Repurposing for small population needsFrontiers in Medicine · 2026
Global Study on Newborn HOspitalization and Parental Experiences (HOPE): rationale and design of a multinational cross-sectional mixed-methods online survey.2026
BronQ Family: assessing the long-term impact of Bronchopulmonary Dysplasia on affected families' health-related quality of life - protocol of a multi-country study.2026
Parents' Experiences and Reported Outcomes of Family‐Centred Care: A Qualitative Systematic ReviewHealth Expectations · 2026
PREPARE: Pregnancy Research on European Women’s Preterm Birth Awareness, Risk, and EducationWomen s Health Reports · 2026
Prophylactic Treatment of Patent Ductus Arteriosus With AcetaminophenJAMA Pediatrics · 2026
Mapping the global implementation of parent-focused infant-centred and family-centred developmental care (IFCDC) principles: a scoping review protocolBMJ Open · 2025