What question did this study set out to answer?

The aim is to explore factors that facilitate and hinder informed consent in neonatal research.

April 10, 2026Open Access

Facilitators and barriers in obtaining informed consent for neonatal research: a scoping review

Key Points

The aim is to explore factors that facilitate and hinder informed consent in neonatal research.
Performed a scoping review analyzing existing literature on informed consent in neonatal research.
Identified and categorized facilitators and barriers reported by parents.
Examined motivations such as perceived benefits and altruism against fears and perceived risks.
Parents frequently express a desire to contribute to science as a motivator for consent.
Common barriers include concerns about risks and the perceived burden of participation.

Abstract

• Parents are often motivated by perceived benefits, altruism, and the wish to contribute to knowledge and science, while parental fear, perceived risks, and burden of participation are barriers to research participation.

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Discussion

Cite this study

Storm et al. (Wed,) studied this question.

synapsesocial.com/papers/69d895ea6c1944d70ce071ba — DOI: https://doi.org/10.1007/s00431-026-06865-y

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Authors

Kelly K. Storm

Erasmus MC

Veroni Stolk

Erasmus MC

Wes Onland

Emma Kinderziekenhuis

Journals

European Journal of Pediatrics

Actions

Institutions

KU Leuven

Erasmus MC

Amsterdam University Medical Centers

References and Citations

Connected Papers

Building similarity graph...

Analyzing shared references across papers

Facilitators and barriers in obtaining informed consent for neonatal research: a scoping review

Key Points

Abstract

Citation Network

Connected Papers

Discussion

Cite this study

Also consider

Authors

Journals

Actions

Institutions

References and Citations

Citation Network

Connected Papers

Discussion

Also consider