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April 10, 2026European Journal of Pediatrics2 citationsOpen Access

Facilitators and barriers in obtaining informed consent for neonatal research: a scoping review

KSKelly K. StormVSVeroni StolkWOWes Onland

Key Points

  • The aim is to explore factors that facilitate and hinder informed consent in neonatal research.
  • Performed a scoping review analyzing existing literature on informed consent in neonatal research.
  • Identified and categorized facilitators and barriers reported by parents.
  • Examined motivations such as perceived benefits and altruism against fears and perceived risks.
  • Parents frequently express a desire to contribute to science as a motivator for consent.
  • Common barriers include concerns about risks and the perceived burden of participation.

Abstract

• Parents are often motivated by perceived benefits, altruism, and the wish to contribute to knowledge and science, while parental fear, perceived risks, and burden of participation are barriers to research participation.

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Cite This Study

Storm et al. (2026) studied this question.

synapsesocial.com/papers/69d895ea6c1944d70ce071bahttps://doi.org/10.1007/s00431-026-06865-y
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