Bullying experiences of youth with neuromuscular disorders and their well-being: A survey study

Purpose: Bullying is a widespread problem in Canada and throughout the world. Children and youth with chronic illnesses or physical disabilities are more likely to be targets of bullying of all kinds. However, there is a paucity of research about bullying involving youth with neuromuscular disorders. The study aimed to assess the prevalence of bullying in youth with neuromuscular disorders and how bullying rates impact their quality of life and well-being. Methods: An online survey was administered at a single timepoint to youth with a neuromuscular disorder. The survey captured data about demographics, bullying frequency, quality of life, and emotional well-being. Descriptive statistics summarized demographic and bullying data. Spearman rank correlations measured the relationships between bullying prevalence and quality of life/well-being. Results: Twenty-nine participants completed the survey (22 male; mean age = 13 years, 10.8 months (SD = 2 years, 10.8 months). Twenty-four of 29 participants (82.8%) had been bullied at some point in their life. Participants reported being bullied most frequently for their appearance and their disability. Bullying did not correlate with quality of life and well-being. Conclusions: Participants with neuromuscular disorders reported high rates of bullying without impacts on quality of life and well-being. We posit participants exhibit resilience.