Cognition and Challenges in Transition Readiness for Chinese Children with Inflammatory Bowel Disease: A Stakeholder-Based Qualitative Study

Abstract Objectives To explore the cognition, barriers and facilitators of transition preparation in children with inflammatory bowel disease to provide a basis for transition planning. Methods A descriptive research method and a purpose sampling method were used to select children with inflammatory bowel disease and their caregivers who received treatment in a pediatric hospital in Nanjing from July to December 2024 for interviews. Semistructured interviews were conducted with children’s digestive medical staff and adult digestive medical staff working in 2 tertiary A hospitals in Nanjing. The interview data were analyzed, summarized, and extracted via Colaizzi's 7-step method. Results From the children’s perspective, transition readiness was limited. Barriers included conflicts between academics and treatment, inadequate self-management skills, and unfamiliar environments and personnel. Facilitators included medical information and psychological support. From the parents’ perspective, transition preparation was often neglected. Barriers included the choice of medical institution, financial burden, and parental overinvolvement. Facilitators included medical referrals and socioeconomic assistance. From the healthcare professionals’ perspective, insufficient attention has been given to transition readiness. Barriers included noninterchangeable information between healthcare organizations and unclear responsibility for transitioning patients. Facilitators included an IBD interhospital cooperation platform and a clear division of roles. Conclusion During the transition process of children with IBD, all stakeholders have insufficient awareness of transition preparation and various obstacles, so different perspectives are needed to improve the transition preparation of children with IBD and promote the continuity of medical care.