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September 19, 2025The Hastings Center Report

From Self‐Advocacy to Solidarity: Narrating Disability and Dementia beyond Personal Identity

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Authors

LBLiz BowenKSKatie Savin

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Overview

This essay reveals how disability justice relates to dementia advocacy, suggesting new structural narratives for solidarity.

Key Points

  • Shifting from personal identity narratives to structural narratives enhances understanding of disability justice.
  • Self-representation is vital, yet insufficient for fully addressing the needs of people with advanced dementia.
  • The essay critiques traditional disability rights narratives that prioritize personal identification over structural issues.
  • Coalitional organizing presents opportunities for broader resistance against ableism, impacting both those with dementia and the disabled community.

Cite This Study

Bowen et al. (2025) studied this question.

synapsesocial.com/papers/68d466be31b076d99fa65bdehttps://doi.org/10.1002/hast.4999
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