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September 27, 2025American Journal of Medical Genetics Part A2 citationsOpen Access

TBX3‐ Related Disorder

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ZHZ HalperinKWKarin Weiss

Key Points

  • Patients with TBX3-related disorders exhibit variable clinical features, including upper limb defects and hormone abnormalities.
  • Recent findings indicate a higher prevalence of pituitary hypoplasia and low gonadotropin levels in those affected.
  • Molecular analysis has identified specific pathogenic variants responsible for ulnar-mammary syndrome and related phenotypes.
  • Recommended management strategies consider the wide spectrum of symptoms to better support patients' quality of life.

Abstract

ABSTRACT Heterozygous pathogenic variants in TBX3 cause Ulnar‐Mammary syndrome (UMS). The phenotype is classically characterized by upper limb defects, apocrine/mammary gland hypoplasia, hypogonadism, and various midline defects. However, the clinical spectrum is highly variable, and some individuals may present with a mild or atypical presentation without limb or mammary involvement. More recent studies identified a high rate of pituitary hypoplasia with decreased levels of gonadotropins and growth hormone in both males and females, in some cases as an isolated finding. We describe the main clinical features and molecular basis of the TBX3‐related disorder and propose recommendations for the treatment and management of patients.

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Cite This Study

Halperin et al. (2025) studied this question.

synapsesocial.com/papers/68d7b3e9eebfec0fc523706ahttps://doi.org/10.1002/ajmg.a.64260
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