Risk Factors for the Development of Emotional Burnout Among Parents Raising Children With Neurofibromatosis

This article presents an analysis of markers of emotional burnout in a group of parents of children suffering from neurofibromatosis. Emotional burnout in parents raising children with chronic diseases represents a serious psychological problem. In the case of neurofibromatosis — a genetic disorder accompanied by multiple complications— chronic stress and the increased burden on parents can lead to the depletion of emotional resources, a deterioration in their mental state, and a reduction in the quality of care for the child. The study involved 60 parents of children suffering from neurofibromatosis. The following methods were used: clinical-psychological – using a specially developed formalized registration card; experimental-psychological methods: Level of Parental Emotional Burnout (LPEB/PV), developed by V.V. Bocharov, A.M. Shishkova, and Yu.S. Chernaya (Bocharov, Shishkova, Chernaya, 2022); The Symptom Checklist SCL-90-Revised (SCL-90-R) (Tarabrina, 2001); The Family Environment Scale (FES) (Eidemiller, Dobryakov, Nikolskaya, 2006); The World Assumption Scale (WAS) by R. Janoff-Bulman, adapted by Padun and Kotelnikova (M.A. Padun, A.V. Kotelnikova, 2008); a modified version of the Dembo-Rubinstein Self-Assessment Scale. Regression analysis was used to identify factors influencing the severity of emotional burnout symptoms in parents of children with neurofibromatosis. The study results revealed criteria for determining the at-risk group and highlighted psychotherapeutic targets that specialists should focus on when working with parents caring for children suffering from neurofibromatosis.