Investigation of provider perceptions reveals priorities for transition to adult health care in chronic intestinal failure, highlighting the urgent need for standardized clinical guidelines.
Life expectancy of children with chronic intestinal failure (CIF) on home parenteral nutrition has greatly improved. Children are now able to grow into adulthood which requires transfer from pediatric to adult health care. A guideline for structured transition is lacking and the demand for a more standardized care for this patient group is necessary. Therefore, we investigated the perceptions of health care professionals from various disciplines working in this specific field, concerning effective interventions regarding transition to adult health care.
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Demirok et al. (2024) studied this question.
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