Diagnosis disclosure patterns among patients with plasma cell disorders.

e19536 Background: Disclosing or withholding information relating to a precancer or cancer diagnosis – including plasma cell disorders (PCDs) like monoclonal gammopathy, smoldering myeloma, and multiple myeloma – across social networks may impact how patients cope with their diagnosis and prognosis. The purpose of this survey was to investigate diagnosis disclosure patterns among patients with PCDs and identify areas for interventions that effectively utilize social support to navigate cancer diagnoses. Methods: We invited participants with PCDs to answer a 34 question online survey about their diagnosis disclosure patterns and perceptions on the HealthTree Cure Hub between April and December 2024. De-identified aggregated responses were analyzed. Results: A total of 510 participants responded (84% with cancer and 15% with precancer). Almost all (98%) reported sharing their diagnosis (Table 1). The most frequent primary individuals to share with were a spouse, domestic partner, or significant other (60%) and friend (s) (10%). Common reasons that participants chose to share included expecting support (45%), empowering others/spreading awareness (31%), and feeling in control (29%). Most (79%) participants reported that sharing information (with the individual they shared the most with) had a positive impact in their coping, with only 4% reporting a negative effect. Study limitations include selection bias. Conclusions: Patients with PCDs have a variety of motivations for sharing their diagnosis and generally perceive disclosure among their primary social networks to be beneficial to their coping. Oncologists may promote coping by encouraging disclosure. [Table: see text]