Cross-sectional analyses demonstrate clinical demographics and renal function in rare kidney disease, highlighting recruitment patterns.
The National Registry of Rare Kidney Diseases (RaDaR) collects data from people living with rare kidney diseases across the UK, and is the world's largest, rare kidney disease registry. We present the clinical demographics and renal function of 25,880 prevalent patients and sought evidence of bias in recruitment to RaDaR.
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Wong et al. (2024) studied this question.
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