Factors Affecting Caregiver Burden in Informal Caregivers of Patients with Autism Spectrum Disorder

Individuals with Autism Spectrum Disorder (ASD) often require lifelong care to meet their daily needs, which is typically provided by informal sources like family members as well as formal caregivers from home health agencies. The persistent stress of raising a child with ASD can potentially lead to parental burnout, highlighting the importance of understanding the struggles faced by these caregivers. Clinicians must prioritize the well-being of both the individuals with ASD and their dedicated caregivers by gaining a comprehensive understanding of the challenges they encounter. Our research aims to investigate and comprehend the specific challenges faced by caregivers of individuals diagnosed with ASD. By utilizing the Caregiver Burden Inventory (CBI; Novak & Guest, 1989), we sought to pinpoint the primary elements that contribute to caregiver burden and evaluate how it affects the wellbeing of caregivers. These findings can ultimately lay the foundation for targeted interventions and strategies aimed at lessening the burden on caregivers, ensuring they receive the necessary support to provide optimal care for their loved ones with ASD while maintaining their own well-being.