Validation study reports the translation and psychometric properties of the FSHD Health Index in Japanese patients, indicating its suitability for tracking disease burden.
Purpose The Facioscapulohumeral Muscular Dystrophy Health Index (FSHD-HI) is a patient-reported outcome measure developed for patients with FSHD. This study aimed to translate the FSHD-HI into Japanese (FSHD-HI-J), evaluate cultural adaptation, and examine its psychometric properties.
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Fujino et al. (2024) studied this question.
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