Cross-sectional study reveals moderate psychosocial burden in parents of children with haemophilia, highlighting the impact of low income and factor VIII replacement therapy.
Key Points
Moderate psychosocial burden affects most parents caring for children with haemophilia, and insufficient family income substantially increases this caregiving strain.
Psychosocial burden was 4.2 times higher with factor VIII therapy, while moderate caregiver strain affected 60.5% of surveyed parents.
Cross-sectional analysis using the Zarit Burden Interview scale demonstrates heightened vulnerability, calling for targeted financial support.