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October 16, 2025BJU International6 citations

Quality of patient information on interstitial cystitis from artificial intelligence chatbots

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JSJordan SantucciPSPeter StapletonJIJoe Ibrahim

Key Points

  • Moderate quality of patient information was found with a median DISCERN score of 3/5 across chatbots.
  • Understandability was moderate, with a median PEMAT-P score of 75%, highest for ChatSonic and lowest for ChatGPT.
  • Actionability consistently scored low, with a median of 40%, demonstrating a critical gap in usable guidance.
  • Readability was high at a college level, with a median Flesch-Kincaid score of 25.4, raising accessibility concerns for patients.

Abstract

Objective To evaluate the quality (DISCERN), understandability and actionability (Patient Education Materials Assessment Tool for Printable Materials PEMAT‐P), readability (Flesch–Kincaid), and misinformation of patient‐facing information on interstitial cystitis generated by four publicly available artificial intelligence (AI) chatbots: ChatGPT‐4.0, Perplexity, ChatSonic, and Bing AI. Methods A total of 10 queries derived from Google Trends and Hopkins Medicine content were submitted to each chatbot. Responses were evaluated by two blinded reviewers using validated tools: the DISCERN instrument (reliability/quality), PEMAT‐P (understandability/actionability), and Flesch–Kincaid Grade Level (readability). Word count and citation inclusion were also recorded. Results Across chatbots, information quality was moderate with a median (interquartile range IQR) DISCERN score of 3/5 (2–3), with Perplexity performing best and Bing AI worst. Understandability was moderate (median IQR PEMAT‐P score 75% 66.7–83.3%), highest for ChatSonic with Hopkins Medicine‐derived prompts and lowest for ChatGPT with Google Trends inputs. Actionability was consistently poor (median IQR score 40% 20–60%), with ChatSonic performing best and Bing AI lowest. Responses averaged 256 words and college‐level readability (median IQR Flesch–Kincaid score 25.4 20.89–28.50) across all platforms, limiting accessibility. Misinformation was minimal across all platforms. Chatbots referencing clinically curated prompts (Hopkins Medicine) scored higher in understandability and completeness than those responding to public search trends. Conclusion Artificial intelligence chatbots offer generally accurate and understandable information about interstitial cystitis but lack actionable guidance and generate content at reading levels above typical patient comprehension. Enhancing readability, actionability, and personalisation may increase their utility as adjunct tools for patient education in functional urology.

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Cite This Study

Santucci et al. (2025) studied this question.

synapsesocial.com/papers/68f0492fe559138a1a06df5bhttps://doi.org/10.1111/bju.70035
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