Caregivers report breathing dysfunction impacts lives in Rett syndrome, suggesting new outcomes in clinical trials.
Caregivers reported that breathing dysfunction was meaningful and measurable and had significant impacts on their child's lives as well as theirs and their families. This study lays the groundwork for guiding the development of novel measures and outcomes within future clinical trials managing breathing dysfunction in Rett syndrome.
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Wright et al. (2025) studied this question.
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