Stress and Coping among Family Caregivers of Children with Down Syndrome: a Meta-synthesis of Qualitative Research

Caregiving for children with Down syndrome (DS) is a long-term responsibility that often results in significant stress and anxiety for family caregivers. It is essential to comprehensively understand caregivers’ stressors and coping strategies to develop effective stress reduction interventions and policies. Despite existing research, there is a lack of comprehensive qualitative studies that collectively explore these aspects. To address this gap, we conducted a meta-synthesis of 58 qualitative and mixed-methods journal articles, focusing on the persistent stressors faced by caregivers and the coping mechanisms they use to mitigate stress. In addition to stress and coping, this synthesis captures the emotional experiences associated with the caregiving journey. This synthesis provides valuable insights for developing targeted stress-reduction interventions and caregiver support programs. Implications for practice, limitations, and future research directions are also discussed.