Knowledge about paediatric screening and monitoring of early‐stage type 1 diabetes: A qualitative exploration of healthcare professionals' perspectives and experiences

Aims Type 1 diabetes is an autoimmune condition in which the presymptomatic stages are detectable through screening and monitoring programmes. These are being rolled out across Australia and internationally. However, little is known about healthcare professionals' knowledge requirements in the context of paediatric screening and monitoring of early‐stage type 1 diabetes. Methods We interviewed 32 purposively sampled Australian healthcare professionals, involved in early‐stage or clinical type 1 diabetes care, about their perspectives and experiences of knowledge regarding paediatric screening and monitoring of early‐stage type 1 diabetes. This study forms part of the Qualitative experiences of Early‐Stage Type 1 diabetes (QuEST) project. Data were analysed using reflexive thematic analysis. Results Four themes were generated: (1) Varied Ways of Developing Knowledge; (2) Desire for Enhanced Knowledge; (3) Need for Far‐Reaching Education; and (4) Knowing How to Meet Families' Psychological Needs. Participants described engaging in ongoing self‐directed and peer‐based learning, while also seeking formal education. They sought knowledge on monitoring procedures, type 1 diabetes risk prediction and communicating with families. Participants also desired guidance on supporting families emotionally within their scope of practice. Conclusions These findings highlight priority areas for healthcare professional education, particularly as screening and monitoring programmes for early‐stage type 1 diabetes expand. Clear guidance and training for healthcare professionals working in early‐stage and clinical type 1 diabetes management are essential, followed by an evaluation of their knowledge after implementing learning strategies informed by our findings.