Setting priorities for how future research in multiple sclerosis in Canada considers equity, diversity and inclusion: A modified e-Delphi study

Background Research studies in multiple sclerosis (MS) lack diversity. Objective To gain consensus on priorities about how future research in MS in Canada addresses equity, diversity, and inclusion (EDI) using a modified e-Delphi technique. Methods We recruited people with lived experience (people with MS (PwMS) or family members); EDI researchers; and clinicians with experience caring for PwMS. The first survey was developed based on a scoping review, EDI literature, and advisory group meetings and included items for five domains: measuring and reporting diversity characteristics, recruiting diverse research populations, role of funders, role of publishers/editors, and training. All items were rated on a 7-point scale with anchors of 1 (aspirational), 4 (achievable), and 7 (core). We undertook three rounds. New items were added after the first round; consensus was defined as a standard deviation ≤1.0. Results Ultimately, 87 people (36 with lived experience, 28 EDI researchers, 23 MS clinicians) completed the first survey, of whom 82 (94.2%) completed the second survey and 81 (93.1%) completed the third. Forty-five items reached consensus across the five domains. Nearly all these items were rated as achievable. Conclusions This e-Delphi identified priorities for how future MS research in Canada addresses EDI.