Examines patient participation preferences and experiences in healthcare among individuals with inflammatory bowel disease, indicating a need for improved engagement strategies.
Key Points
To explore the preferences and experiences of patient participation in healthcare for individuals with inflammatory bowel disease.
Survey of patients with IBD using the 4Ps tool to assess preferences and experiences of participation.
Statistical analysis of 737 unique responses to evaluate discrepancies between preferences and actual participation.
Focus on twelve attributes related to patient participation.
A majority of patients rated various participation aspects as very important or crucial.
Key attributes for participation included being listened to, explaining symptoms, and learning about care plans.
39-51% of patients reported a mismatch between their desired and actual participation, often preferring more engagement.
Mismatches were particularly noticeable in managing prescribed care and self-care.