P0359Crohn’s Disease Surgery Experiences on TikTok. A thematic analysis of patient-generated content, as an indicator of priorities and concerns

Background TikTok, a widely used social media (SM) platform, creates a unique environment for open self-expression. It serves as a valuable outlet for young Crohn’s disease (CD) patients undergoing surgery to voice their experiences and concerns. This study seeks to evaluate patient-created TikTok content to gain deeper insights into their priorities and challenges in relation to surgery. Methods A new TikTok account was created exclusively for data collection. The most popular combinations and hashtags for each CD procedure were identified, following preliminary searches combining relevant keywords. The first 10 results for each search were analysed, after application of exclusion criteria. Data collection included video and creator demographics, and a hybrid content-thematic analysis was undertaken, structured around Braun and Clarke’s six-stage approach. Results A total of 12 searches was performed, combining search terms and hashtags for CD and surgical procedures. 120 videos were retrieved from all searches and a total of 64 videos were analysed, following exclusion of 56 videos. Mean duration was 141 seconds (6-446), with a mean of 5148 likes (8-181,600) and 161 shares (0-7,902). Most of the videos (88%) were categorised as informational/raising awareness, from patient to patient. Thematic analysis identified 4 broad, inter-connecting themes: provision of information in relation to CD’s pathophysiology and procedures, provision of information in relation to the immediate peri-operative journey, informing on daily living after surgery and the impact on quality of life (QoL) and community building and network development, with a focus on normalising life after surgery and breaking any stigma around it. Conclusion This study is the first to explore key themes shared by patients undergoing surgery for CD on a popular SM platform. It enhances clinicians’ understanding of patient priorities and interests, as a means to improve communication and support in pre-operative decision-making. Most importantly, the study underscores the value of sharing lived experiences among patients themselves: this remains an irreplaceable source of insight, that cannot be replicated by medical professionals. Conflict of interest: Petmeza, Christina Anna: No conflict of interest Goyal, Chirag: No conflict of interest Mr. Argyriou, Orestis: No conflict of interest Ghersin, Itai: No conflict of interest Worley, Guy: No conflict of interest Tozer, Philip: Personal Fees: Takeda - speakers fees, member of Inspire, and advisory boards Ferring - speakers fees Falk - speakers fees Tillott’s - speakers fees J & J - speakers fees Abbvie - speakers fees Hart, Ailsa: Grant: Takeda Personal Fees: Abbvie, Amgen, Arena, AZ, Falk, Celltrion, Eli Lilly, Ferring, Genentech/ Roche, GSK, Pfizer, Takeda, Napp, Pharmacosmos, Janssen (J & J), Bristol-Myers Squibb, Gilead, Galapagos, Alfasigma Sahnan, Kapil: Speaker fees from Takeda, JnJ, Intuitive Ad Board with Medtronic