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January 24, 20264 citations

UK consensus guidelines for multidisciplinary care of children and young people with achondroplasia: a modified Delphi process.

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TCToby CandlerKAKate AliEBEmma Bewick

Key Points

  • To establish consensus guidelines for the multidisciplinary care of children and young people with achondroplasia in the UK.
  • Conducted a modified Delphi process to gather expert opinions on care recommendations.
  • Aligned guidelines with international best practices and UK healthcare systems.
  • Focused on anticipatory care and promoting independence in care.
  • Established UK-specific recommendations for the care of children with achondroplasia.
  • Guidelines emphasize the importance of standardisation and equitable care.
  • Promoted improved health and psychosocial outcomes for CYP.

Abstract

These are the first UK-specific multidisciplinary recommendations for the care of CYP with ACH. Aligned with international best practices and tailored to UK healthcare systems, they support anticipatory care, promote independence and enhance health and psychosocial outcomes. The guidelines offer a foundation for service planning, standardisation and equitable care.

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Cite This Study

Candler et al. (2026) studied this question.

synapsesocial.com/papers/6974606dbb9d90c67120a405https://doi.org/10.1136/archdischild-2025-329829
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