This report reviews measurement tools assessing health-related quality of life in cancer patients, highlighting implications for patient-centered care.
Health-related quality of life (HRQoL) can be globally defined as ‘‘how well a person functions in their lifeand his or her perceived well-being in physical, mental, and social domains of health’’ (1). Functioningrefers here to a patient’s ability to carry out some pre-defined activities, and well-being to his/her subjectivefeelings (1). More specifically, the framework developed by Wilson and Cleary, which is currently the mostapplied theoretical model of HRQoL (2), conceives HRQoL as a multidimensional construct encompassingfive components: symptom status, functional status, biological and psychological variables, general healthperceptions and overall quality of life. Over the past decades, there has been increasing recognition thatassessing cancer patients’ HRQoL is pivotal to delivering optimal patient-centred healthcare (3,4). HRQoLis now perceived as a meaningful endpoint throughout the cancer continuum (5,6) and can serve as avaluable source of information to guide healthcare policies (e.g., Europe’s Beating Cancer plan,(7)).However, HRQoL is often inaccurately assessed by health care providers (HCPs) and poorly captured bymedical procedures or tests, highlighting the need for patient involvement in reporting their outcomes(3,4,8,9). Patient-reported outcomes (PROs) are defined by the Food and Drug Administration as “ameasurement based on a report that comes directly from the patient about the status of a patient’s healthcondition, without amendment or interpretation of the patient’s response by a clinician or anyone else”(10). Patient-reported outcome measures (PROMs) refer to the tools used to measure PROs and are nowsystematically used for the assessment of HRQoL in cancer care.
No takes yet. Share an insight, caveat, or question.
Leysen et al. (2023) studied this question.
Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context: