The CYP-TUQEE addresses a prominent gap by providing an accessible tool for data collection, tailored to CYP. Inclusion of patient time costs can assist in decision-making and ensure prioritisation of interventions respectful of patients' time. Future research will involve additional testing of the CYP-TUQEE in a real-world setting for further validation and refinement, and elicitation of a 'unit cost' (value) for CYP's time.
Morgan et al. (Sun,) studied this question.