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March 4, 2026Journal of Cancer PolicyOpen Access

Database Completeness and Evaluation of Potential Barriers and Facilitators of Data Collection in the National Pediatric Cancer Registry in Ethiopia

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Authors

CLChloe LavieriNPNi Penn-HenryABAmina Bash

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Overview

Mixed-methods study reveals data completeness and identifies barriers in Ethiopia's pediatric cancer registry, suggesting improvements for future use.

Key Points

  • Evaluate the completeness of data and identify barriers and facilitators affecting data collection in Ethiopia’s pediatric cancer registry.
  • Mixed-methods study design
  • Quantitative analysis of 522 medical records for completeness
  • Qualitative thematic coding from quarterly meeting transcripts
  • Assessment of data variable responses including both complete and incomplete variables
  • Focused on hospital-based registry at Tikur Anbessa Specialized Hospital
  • 90% of patient records were deemed complete with responses for 82 of 107 variables
  • 73 of 86 essential variables were also complete with similar response rates
  • Identified barriers included lack of training and provider responsibility
  • Five qualitative themes emerged highlighting usability and logistical issues
  • Stakeholder engagement showed a desire for improved data specificity and registry refinement

Cite This Study

Lavieri et al. (2026) studied this question.

synapsesocial.com/papers/69a7cc7ad48f933b5eed7ff4https://doi.org/10.1016/j.jcpo.2026.100729
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