Quality of life and care experiences in a US multi-institutional neuroendocrine tumor cohort

Key Points

• The study aims to evaluate the quality of life and care experiences of patients with neuroendocrine tumors across different sites.
• Analyzed data from a large, multi-institutional cohort of neuroendocrine tumor patients.
• Assessed health-related quality of life (HRQoL) based on tumor site and disease duration.
• Identified persistent symptom burdens affecting patient experiences.
• Found variations in health-related quality of life based on tumor site.
• Observed significant differences in symptom burden related to disease duration.
• Emphasized the importance of longitudinal assessments for improving patient care.