What question did this study set out to answer?

To understand the experiences of Chinese adolescents living with congenital scoliosis after corrective surgery.

March 16, 2026Disability and Rehabilitation0 citations

Living with congenital scoliosis: a qualitative phenomenological study of Chinese adolescents receiving corrective surgery

TCTao Chen QLQiang LiCentral South University YCYong Chen

Key Points

To understand the experiences of Chinese adolescents living with congenital scoliosis after corrective surgery.
Qualitative phenomenological design was used to gather in-depth insights.
Participants included adolescents undergoing corrective surgery for congenital scoliosis.
Data were collected through interviews focusing on personal experiences and feelings.
Adolescents emphasized participation in life rather than focusing on stigma or sadness.
Participants defined their outcomes, highlighting the importance of their voice in care decisions.

Abstract

In this tertiary-care cohort, adolescents centered participation and ordinariness more than stigma or sadness. Care and research should prioritize adolescent-defined outcomes and avoid presuming psychosocial distress as a default.

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