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March 18, 2026Journal of Palliative Medicine

The Qualitative Impact of Incorporating Photo-Narratives into the Care of Children with Severe Neurological Impairment: Parent and Clinician Perspectives

Ellie Oslin Nell E Baumgarten Elizabeth JULIAN Annie McDermott Jori Bogetz

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Key Points

The study aims to explore how photo-narratives can enhance the care experience for children with severe neurological impairment from both parent and clinician viewpoints.
Qualitative interviews with parents and clinicians
Analysis of perceptions related to care practices
Exploration of emotional impacts of photo-narratives
Parents reported feeling more connected to their children during care
Clinicians emphasized improved communication through stories
Both groups identified benefits for emotional well-being and understanding of care

Implication

Qualitative insights reveal that photo-narratives enhance care perceptions among parents and clinicians, suggesting improved relationships.

Abstract

Photo-narratives have the potential to promote humanistic care among parents of children with SNI and inpatient clinicians.

Discussion

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Cite This Study

Oslin et al. (2026) studied this question.

synapsesocial.com/papers/69be36bf6e48c4981c675d77 https://doi.org/10.1177/10966218261433448

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Keep reading

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

1Psychosocial experiences of clinicians providing care for children with severe neurological impairment2024 · 6 citations
2Meaning-Making Among Parents of Children With Severe Neurologic Impairment in the PICU2024 · 7 citations
3Parents' and Healthcare Providers' Perceptions About the Use of Narrative Diaries in the Neonatal Intensive Care Unit: A Prospective Feasibility StudyFeasibility Study · 2026 · 2 citations
4When images speak care: Nurses' visual accounts of paediatric practiceOriginal Research · 2026
5Connecting Residents and Children with Severe Neurologic Impairment Using a Novel Personal History Tool2024

More related papers

Improving the clinician experience of caring for children with severe neurological impairment by meeting caregiver and family needs2024
Narrative Medicine Competencies in Intellectual Disability Rehabilitation—A Narrative Review2026
A Picture Is Worth a Thousand Words—Using Photovoice to Unravel the Caregiving Experiences of Parents of Children With Special Education Needs2026

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