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March 22, 2026Epilepsy & Behavior1 citationsOpen Access

Integrating social and neurobehavioral understandings of epilepsy stigma into personalized care strategies

GGGhazaleh GhorbannezhadAGA. Gorji

Key Points

  • Explore the relationship between epilepsy-related stigma and patient outcomes and propose personalized care strategies.
  • Examined the bidirectional relationship between epilepsy-related stigma and medical outcomes.
  • Proposed a holistic approach integrating medical and psychosocial aspects of care.
  • Identified initiatives to reduce stigma, including counseling and awareness campaigns.
  • Addressing stigma positively influences treatment adherence and disease management.
  • Holistic strategies lead to enhanced quality of life and psychosocial recovery.
  • Personalized plans improve cognitive and emotional well-being for patients.

Abstract

There is a bidirectional relationship between epilepsy-related stigma (ERS) and medical outcomes.ERS negatively influences treatment adherence and disease management, whereas insufficient medical improvement can, in turn, exacerbate ERS.ERS remains a significant challenge, often leading to delays in diagnosis, limiting appropriate therapies, and creating difficulties in social integration for patients with epilepsy.Even when treatment successfully achieves seizure cessation, failure to address ERS can limit patient social integration, reduce quality of life, and hamper long-term psychosocial recovery.Previous studies suggest that a holistic and personalized medicine approach that addresses both the medical and psychosocial aspects of epilepsy, with a particular focus on reducing ERS, can significantly improve diagnosis and treatment outcomes.Integrating culturally sensitive mental health support and community-specific advocacy initiatives targeting ERS reduction into the routine management of epilepsy can promote clinical and psychosocial outcomes and help patients in their reintegration into normal daily life.Key initiatives may include personalized counseling to mitigate the emotional and psychological impact of ERS, targeted cultural competency training for healthcare professionals, and public awareness campaigns.Integrating these strategies into comprehensive epilepsy care is particularly important for marginalized populations, where poverty and limited healthcare access exacerbate ERS.A personalized anti-ERS plan that integrates individualized clinical management with targeted interventions designed for the specific ERS experiences of each patient can improve treatment adherence, enhance cognitive and emotional well-being, and promote better social integration by addressing both the psychological and social dimensions of ERS.

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Cite This Study

Ghorbannezhad et al. (2026) studied this question.

synapsesocial.com/papers/69bf8692f665edcd009e8ef5https://doi.org/10.1016/j.yebeh.2026.111002
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