Patient Activation in Childhood, Adolescent, and Young Adult Cancer Survivors: Current Insights and Implications for Survivorship Care—A Systematic Review From the e‐QuoL Project

Charlotte Demoor‐Goldschmidt; Anne Maas; Gisela Michel; A. Bertrand; Kristen Thornton; M. Bellanger; Anna‐Liesa Filbert; Desiree Grabow; Monica Muraca; Katharina Roser; Sara Oberti; Jelena Roganović; Hanne C. Lie

doi:10.1002/1545-5017.70174

March 26, 2026Pediatric Blood & Cancer

Patient Activation in Childhood, Adolescent, and Young Adult Cancer Survivors: Current Insights and Implications for Survivorship Care—A Systematic Review From the e‐QuoL Project

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Key Points

The research aims to evaluate patient activation among childhood, adolescent, and young adult cancer survivors to enhance survivorship care.
Conducted a systematic review of existing literature on patient activation in cancer survivors.
Assessed measurement biases in activation assessment tools.
Identified vulnerable groups among cancer survivors based on activation levels.
Identified activation assessment as a valuable tool for identifying vulnerable cancer survivors.
Tailored interventions based on activation can improve self-management and empower survivors.
Enhanced survivorship care is linked to improved long-term outcomes for activated survivors.

Implication

A systematic review assesses patient activation impacts on survivorship care, indicating better outcomes in vulnerable survivors.

Abstract

Despite some measurement biases, activation assessment in CAYACS facilitates identification of vulnerable survivors, enables tailored interventions, and fosters empowerment and self-management to improve personalized survivorship care and long-term outcomes.

Discussion

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Cite This Study

Demoor‐Goldschmidt et al. (2026) studied this question.

synapsesocial.com/papers/69c8c25dde0f0f753b39cb10 https://doi.org/10.1002/1545-5017.70174

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Patient Activation in Childhood, Adolescent, and Young Adult Cancer Survivors: Current Insights and Implications for Survivorship Care—A Systematic Review From the e‐QuoL Project

Key Points

Implication

Abstract

Discussion

Cite This Study

Patient Activation in Childhood, Adolescent, and Young Adult Cancer Survivors: Current Insights and Implications for Survivorship Care—A Systematic Review From the e‐QuoL Project

Key Points

Implication

Abstract

Discussion

Cite This Study

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