Family Experiences in a Pediatric Clinical Brain–Computer Interface Program: A Qualitative Study

By documenting family experiences with and expectations of BCIs, these findings can guide the development of BCI use in clinical and recreational programs. Occupational therapy practitioners can use the transformative potential of BCI technology to create new pathways for participation and empowerment in the lives of children and youth with disabilities. Plain-Language Summary: Children with complex disabilities often cannot take part in play and recreation. Many activities are not accessible to them. Brain-computer interface (BCI) technologies can help kids play without needing to move or speak. We asked families using BCIs about their experiences. They shared that use of a BCI empowered their child and allowed others to consider them in a new light. Some families enjoyed the programming, and others found the activities too simple over time. Many families shared that BCI headsets were uncomfortable. A better design for kids with disabilities is important. Families hope that BCIs will help kids control their environment in the future. Occupational therapists should understand how kids and families feel about using BCIs. This study helps occupational therapists learn about the benefits of BCIs in their practice and the challenges of using them.