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April 3, 2026Digestive Diseases and Sciences4 citationsOpen Access

The Multiple Dimensions of Self-Management in Active Inflammatory Bowel Disease: A Qualitative Analysis of Patients’ Daily Lived Experiences

SCShirley Cohen-MekelburgGHGal HodishDEDrew Ebner

Key Points

  • This research aims to explore the various self-management strategies patients employ while living with inflammatory bowel disease.
  • Qualitative analysis of patients' daily experiences
  • Focus on behavioral changes and coping mechanisms
  • Assessment of diet, treatment management, and social support
  • Patients identified crucial self-management skills necessary for symptom recognition and coping
  • Social support was highlighted as a key factor in managing stress and mental health issues
  • Confidence and motivation were essential in handling the unpredictability of the disease

Abstract

IBD self-management requires complex behavioral changes, including building several skills in recognizing and managing symptoms, managing diet and treatment, navigating care, and coping with unpredictability. Patients must work to build their confidence, avoid maladaptive thinking, and remain motivated despite setbacks. Addressing stress and mental health issues as well as eliciting social support are also critical to helping patients cope with IBD.

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Cite This Study

Cohen-Mekelburg et al. (2026) studied this question.

synapsesocial.com/papers/69cf5f645a333a821460e79bhttps://doi.org/10.1007/s10620-026-09858-x
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