Access to Care in Pediatric Acute-Onset Neuropsychiatric Syndrome: A Survey of Families’ Journeys to and Experiences with Intravenous Immunoglobulin Treatment

Denise Calaprice; Christina Moon; Melanie Helvick; Chase A. Harvey; Angela Tang; Kelsey Aguirre; Ryan Tererri; J. H. Hunt; Christopher Whitty; Megan Fitzgerald

doi:10.1177/10445463261440137

April 9, 2026Journal of Child and Adolescent Psychopharmacology

Access to Care in Pediatric Acute-Onset Neuropsychiatric Syndrome: A Survey of Families’ Journeys to and Experiences with Intravenous Immunoglobulin Treatment

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Key Points

The aim is to investigate the experiences of families seeking intravenous immunoglobulin (IVIG) treatment for pediatric acute-onset neuropsychiatric syndrome (PANS).
Conducted a survey of families pursuing IVIG treatment
Collected data on delays, denials, and financial challenges
Analyzed perceived quality of life improvements following treatment
Families experienced significant delays and repeated denials in accessing IVIG
Many faced financial burdens, resorting to loans and asset sales
IVIG treatment was linked to notable improvements in quality of life for patients and caregivers

Implication

Survey reveals families face access barriers to IVIG treatment for PANS, indicating financial and emotional impacts.

Abstract

Families pursuing IVIG for PANS reported prolonged delays, repeated denials, and financial strain, often resorting to loans, asset sales, and additional work. Despite these burdens, IVIG was correlated with marked improvements in perceived QoL for patients and caregivers.

Discussion

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Cite This Study

Calaprice et al. (2026) studied this question.

synapsesocial.com/papers/69d9e5d178050d08c1b76129 https://doi.org/10.1177/10445463261440137

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Access to Care in Pediatric Acute-Onset Neuropsychiatric Syndrome: A Survey of Families’ Journeys to and Experiences with Intravenous Immunoglobulin Treatment

Key Points

Implication

Abstract

Discussion

Cite This Study

Access to Care in Pediatric Acute-Onset Neuropsychiatric Syndrome: A Survey of Families’ Journeys to and Experiences with Intravenous Immunoglobulin Treatment

Key Points

Implication

Abstract

Discussion

Cite This Study

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