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Photovoice study reveals the experiences of typically developing siblings with autism, suggesting the need for support.
First-hand research on siblings of children with autism spectrum disorders (ASD) is limited. This study investigated the lived experiences of typically developing siblings (TDS) of children with ASD using photovoice. Seven children, aged 9–11, who have siblings with ASD in the early childhood period (aged 3–8), participated in this action research study. Semi-structured interviews and a focus group discussion were conducted to explore the meaning of the photographs taken by TDS. The data were analyzed using a four-stage approach: visual analysis of the photographs, content analysis of the interviews, cross-comparison, and theorization. The findings are presented in three themes: ASD through a sibling’s eyes, being a sibling of a child with ASD, and emerging from the shadow of ASD. This study, conducted with young siblings, was promising in gathering data from siblings as primary informants. The strengths and limitations of the study are presented, and recommendations are provided. Siblings have challenging and contributing experiences with their siblings with ASD. Siblings require parental support and age-appropriate information about ASD. Photovoice is a promising method to explore the lived experiences of young siblings.
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Yumrutepe et al. (2026) studied this question.
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